NDF Talks

Author: Neuromuscular Disease Foundation

Welcome to the Neuromuscular Disease Foundation's podcast "NDF TALKS Each episode features a GNE Myopathy community members personal experience with GNE Myopathy. Participants will include patients, scientists, caregivers and family members, all sharing the triumphs and sometimes tribulations of life with this rare disease in order to provide potentially helpful and supportive information for anyone whose life is touched by GNE Myopathy. About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding
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Language: en

Genres: Business, Non-Profit

Contact email: Get it

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NDF Talks: "Getting To Know Your Genes" with genetic counselor Estie Rose
Episode 12
Tuesday, 20 September, 2022

NDF Talks is happy to have Estie Rose educate us on the importance of pre-conception genetic screening and options available to help you have a child. Estie is a certified genetic counselor and outreach coordinator forJScreen, a national non-profit Jewish genetic disease screening program based out ofEmory University School of Medicine. Estie graduated from Yeshiva University’s SternCollege for Women and then went on to complete her Masters in Genetic Counselingfrom the Ichan School of Medicine at Mount Sinai. She has a special interest incommunity education and outreach, and is proud to be a resource for individuals of herown community who are facing genetic health issues.