allfeeds.ai

 

IFOPA Podcast Series  

IFOPA Podcast Series

Author: IFOPA

The International Fibrodysplasia Ossificans Progressiva (FOP) Association (IFOPA) serves families living with the ultra-rare genetic disease fibrodysplasia ossificans progressiva, as well as researchers and health care providers studying and treating this disease. The IFOPA is a US-based nonprofit organization whose mission is to fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. You can find us online at ifopa.org.
Be a guest on this podcast

Language: en

Genres: Business, Life Sciences, Non-Profit, Science

Contact email: Get it

Feed URL: Get it

iTunes ID: Get it


Get all podcast data

Listen Now...

Navigating Life with FOP – A Sibling Story
Friday, 18 July, 2025

Siblings Laura and Mark Rossano join IFOPA Family Services Manager Hope Newport for an open and insightful discussion on navigating sibling relationships when one sibling is living with FOP.

 

We also recommend:


The Paranormal and The Sacred Radio Show
The Paranormal and The Sacred

Focus on Disaster Medicine and Preparedness
ReachMD

Curious Minds at Work
Gayle Allen

The Montana Moves & Meals Wellchat
Neal Andrews, MS, CSCS and Cristin Stokes, RDN, LN

Alumni AudioLab
OeAD Austrian Agency for Education and Internationalization.

Peds Soup: A Pediatrics Podcast
Jim McCarthy

Life on the Streets: Voices of the Homeless of Silicon Valley
Valley Medical Center/ Valley Homeless Healthcare Program

The Office Hour
Alexander

SaiB Chronicles
SaiB Chronicles

PolitikWissen

Costing the Earth
Hannah Stankiewicz

Selvagerias