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IFOPA Podcast SeriesAuthor: IFOPA
The International Fibrodysplasia Ossificans Progressiva (FOP) Association (IFOPA) serves families living with the ultra-rare genetic disease fibrodysplasia ossificans progressiva, as well as researchers and health care providers studying and treating this disease. The IFOPA is a US-based nonprofit organization whose mission is to fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. You can find us online at ifopa.org. Language: en Genres: Business, Life Sciences, Non-Profit, Science Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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Navigating Life with FOP – A Sibling Story
Friday, 18 July, 2025
Siblings Laura and Mark Rossano join IFOPA Family Services Manager Hope Newport for an open and insightful discussion on navigating sibling relationships when one sibling is living with FOP.