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IFOPA Podcast Series  

IFOPA Podcast Series

Author: IFOPA

The International Fibrodysplasia Ossificans Progressiva (FOP) Association (IFOPA) serves families living with the ultra-rare genetic disease fibrodysplasia ossificans progressiva, as well as researchers and health care providers studying and treating this disease. The IFOPA is a US-based nonprofit organization whose mission is to fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. You can find us online at ifopa.org.
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Language: en

Genres: Business, Life Sciences, Non-Profit, Science

Contact email: Get it

Feed URL: Get it

iTunes ID: Get it


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Navigating Life with FOP – A Sibling Story
Friday, 18 July, 2025

Siblings Laura and Mark Rossano join IFOPA Family Services Manager Hope Newport for an open and insightful discussion on navigating sibling relationships when one sibling is living with FOP.

 

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