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AiArthritis Voices 360 Talk ShowAuthor: International Foundation for Autoimmune & Autoinflammatory Arthritis
On Sunday, join International Foundation for AiArthritis and fellow patient cohosts as they lead discussions in the patient community as well as consult with stakeholders worldwide to solve the problems that matter most in the AiArthritis community. Language: en Genres: Education, Health & Fitness Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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Ep 119: What I Wish I Would’ve Known After Diagnosis
Episode 155
Sunday, 1 March, 2026
A new diagnosis can bring relief, fear, and uncertainty all at once. In this episode, Leila and Deb share advice from the AiArthritis community on what they wish they had known right after being diagnosed with an autoimmune or autoinflammatory arthritis disease. Leila and Deb explore the importance of trusting your body, especially when tests are inconclusive or symptoms are dismissed. This episode highlights how self advocacy, second opinions, and clear communication with your care team can shape your experience. Community members also reflect on the emotional side of diagnosis, including grief, patience, and the mindset shift that comes with learning to live with chronic illness. Whether you are newly diagnosed or supporting someone who is, this episode offers validation and practical guidance for navigating the early stages of the patient journey. Episode Highlights: Why trusting your body matters, even when tests are unclear How self advocacy and second opinions can change your care experience The emotional impact of diagnosis and the importance of grace and patience Practical tools like symptom tracking, rest, and shared decision making to support long term management Links & Resources Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org Donate to Support the Show: www.aiarthritis.org/donate Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE Connect with our Co-Hosts: Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Connect with Leila: Tiktok: @Lupuslifestyle.lei Deb Constien is a medically retired Registered Dietitian and a Representative for the AiArthritis with Rheumatoid Arthritis. Deb is also on the Advisory Council for WREN- Wisconsin Research Education Network and a Patient Family Advisor- PFA on an International PCORI research study for ACP- Advanced Care Planning. Connect with Deb: Facebook: @deb.majcherconstien Instagram: @debconstien Twitter: @debconstien
