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What Am I Thankful ForAuthor: What am I Thankful For
We are the Remillet family Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well. Language: en Genres: Kids & Family, Parenting Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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Live Episode: Maddux will need brain surgery (#14) this week
Monday, 18 July, 2022
Update on how our 2022 has been going Why we haven't been recording Update on Maddux's school year Professional Updates Brain Surgery #14 Diagnosis from routine MRI Typical signs of shunt failure Famous sports figures who wore #14 (https://www.ranker.com/list/best-athletes-who-wore-14/ranker-sports) Our brain surgery playbook Quarantine leading up to surgery Have to shave his head bald Bowel management Stay at a nearby hotel Spring Break - Hawaii Trip Trouble with COVID Protocols Flying with special accommodations Beach photoshoot Hiking Pill Box (http://www.lanikaipillbox.com/) Rental Equipment (https://www.babyquip.com/) Maddux's other accomplishments School year awards Challenger Little League Baseball Abilities Expo Celebrity Encounters (https://www.instagram.com/whatamithankfulfor/) Maddux was in a children's book (https://theablefables.com/product/garys-gigantic-dream/) Complete his 5th 5K this year Struggles with Medical Insurance Lagging authorizations Rising Co-pays Outright denials of things that he needs Leads to hours and follow-up calls and frustration How do other families navigate this? Check out the blog: https://thankfulforpod.wpcomstaging.com/home/
