Project CASK Podcast

Author: Project CASK

The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.
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Language: en

Genres: Business, Non-Profit

Contact email: Get it

Feed URL: Get it

iTunes ID: Get it

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[ The ROAR #8 ] 2025 March Updates
Friday, 21 March, 2025

The latest episode of [ The Roar ] is here!This episode, we’re diving into:🩵💜🩷 A huge thank you to our community for your incredible Rare Disease Day advocacy—your voices matter!🔬 [1:00] Research updates - what’s happening behind the scenes on CASK gene research🎨 [5:15] The Ultra Rare Collection fundraiser – Join us, share and follow @ultrararecollection⚖️ [7:35] Federal budget cuts & advocacy for Medicaid – Sharing our stories to help build understanding of the importance of Medicaid, the Everylife Foundation for Rare Diseases, and Project CASK-funded research is still moving forward!+ Medicaid and Federal Funding take action with Everylife Foundation:https://everylifefoundation.org/rare-advocates/take-action/+ Sign up for Citizen Health + Project CASK:https://www.citizen.health/partners/project-cask+ Create your personalized Liocorn Donation page:https://givebutter.com/Liocorn/join+ Register with Project CASK:https://www.projectcask.org/register