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P4A Let's Talk Rare: The Life Science PodcastAuthor: Partners4Access
Welcome to P4A Lets Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com Language: en-gb Genres: Science Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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Voices Uncovered: Understanding Mental Health in Rare Diseases using Social Listening
Monday, 29 September, 2025
In this episode, we tune into the unfiltered voices of patients and caregivers navigating life with rare conditions.Through the power of social listening, we uncover the hidden struggles around mental health—stories often left unsaid in clinics but shared openly online. Joined by Lauren Roberts from Rareminds, we explore what these conversations reveal, why they matter, and how they can reshape support for rare disease communities.
