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Living With PSCAuthor: PSC Partners Seeking a Cure
Primary sclerosing cholangitis (PSC) is a rare disease that affects the bile ducts inside and outside of the liver. There is no cure, and no treatments exist to slow the progression of PSC. This podcast, moderated by Niall McKay, explores the latest research and knowledge about PSC: from patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has it all! PSC Partners Seeking a Cure is a nonprofit organization dedicated to providing education and support to PSC patients and caregivers, and raising funds to research causes, treatments and cures for primary sclerosing cholangitis. PSC Partners has awarded 2.6 million in international research grants, has a growing patient registry, and holds annual conferences for patients and caregivers. Language: en Genres: Health & Fitness, Medicine Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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Ricky and Audra Speak about the Exciting New Treatments for PSC
Episode 48
Friday, 3 July, 2026
In this episode, Niall speaks with Ricky Safer and Audra Flemming from PSC Partners about a remarkable moment for the PSC community: Ricky's recognition by AASLD, growing research momentum, and the power of patient-led advocacy. They discuss new developments in PSC and cholangiocarcinoma blood tests, the work of the PSC Partners International Collaborative Research Network, and why patient voices are becoming central to research and clinical trial design. Audra and Ricky also share news about the PSC Partners Conference taking place this November in Denver, in partnership with AASLD. Niall admits he kept saying "wow" during the conversation, because there was so much hopeful news: international collaboration, patient-led research, progress in symptom-focused drug development, and a community that continues to shape the future of PSC care. In This Episode Ricky's AASLD award and what it means for the PSC community New blood-test developments for PSC and cholangiocarcinoma The PSC Partners International Collaborative Research Network Patient-led research and the importance of lived experience The November PSC Partners Conference in Denver with AASLD Hopeful developments in PSC symptom treatment Links PSC Partners: https://pscpartners.org
