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Rare Mamas RisingAuthor: Nikki McIntosh
A podcast for mothers of children with rare diseases to find strategies, strength, support, and sisterhood! Nikki McIntosh, founder of Rare Mamas, author of the book Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease, and podcast host, discusses rare disease parenting with mothers who have navigated their children's rare disease diagnoses with remarkable resilience. Catch an episode of Rare Mamas Rising and walk away encouraged, uplifted, and empowered! Language: en Genres: Health & Fitness, Kids & Family, Mental Health, Parenting Contact email: Get it Feed URL: Get it iTunes ID: Get it Trailer: |
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Hoping Through the Holidays
Episode 54
Monday, 8 December, 2025
RARE MAMAS RISING- EPISODE 54 Hoping Through the Holidays Christmas is the season of hope. But hope can be complicated for rare disease parents navigating exhaustion, medical uncertainty, chronic stress, and the ache of unanswered prayers. In this episode of Rare Mamas Rising, we explore what hope really looks like for rare disease parents and caregivers during a season that can feel both beautiful and painfully complicated. This episode gently unpacks the realities of hoping in the hard: hope in the waiting, hope after disappointment, hope when you're exhausted, and hope when you're scared to try again. It offers reflections on why hope is an action we choose, how it keeps us moving in the world of medical parenting, and the surprising ways hope can transform us even before our circumstances change. For every rare caregiver navigating uncertainty or heaviness this time of year, this conversation creates space to reconnect with hope. Links & Resources Mentioned: For more thoughts on Hope, check out Nikki's new book, Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease. Order the book today at the links below: Amazon Apple Books Barnes & Noble Bookshop.org Books-A-Million IndieBound Indigo Kobo Porchlight Book Info: www.raremamas.com/book CONNECT WITH NIKKI Facebook https://www.facebook.com/RareMamas1/ Instagram https://www.instagram.com/Rare_Mamas/ Website https://raremamas.com/ Email info@raremamas.com
