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Rare Mamas RisingAuthor: Nikki McIntosh
A podcast for mothers of children with rare diseases to find strategies, strength, support, and sisterhood! Nikki McIntosh, founder of Rare Mamas, author of the book Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease, and podcast host, discusses rare disease parenting with mothers who have navigated their children's rare disease diagnoses with remarkable resilience. Catch an episode of Rare Mamas Rising and walk away encouraged, uplifted, and empowered! Language: en Genres: Health & Fitness, Kids & Family, Mental Health, Parenting Contact email: Get it Feed URL: Get it iTunes ID: Get it Trailer: |
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Plugging Into the Rare Community
Episode 55
Monday, 23 February, 2026
RARE MAMAS RISING- EPISODE 55 Plugging Into the Rare Community In this special Rare Disease Day episode of Rare Mamas Rising, Nikki McIntosh reads the chapter "Plugging Into the Rare Community" from her book Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease and reflects on what Rare Disease Day has taught her as a rare disease mom. This heartfelt episode explores the power of the rare disease community, the importance of caregiver support, and why connection among rare moms can change the way we carry even the hardest seasons of rare disease parenting. Whether you are newly navigating a diagnosis or years into your caregiving journey, this episode offers encouragement, validation, and a reminder that no rare mama was meant to do this alone. Links & Resources Mentioned: For more info on Rare Disease Day, check out: https://www.rarediseaseday.org https://rarediseases.org For more support and sisterhood, check out Nikki's new book, Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease. Order the book today at the links below: Amazon Apple Books Barnes & Noble Bookshop.org Books-A-Million IndieBound Indigo Kobo Porchlight Book Info: www.raremamas.com/book CONNECT WITH NIKKI Facebook https://www.facebook.com/RareMamas1/ Instagram https://www.instagram.com/Rare_Mamas/ Website https://raremamas.com/ Email info@raremamas.com PODCAST INFO podcast@raremamas.com
