Demystifying NMO & MOG

Author: The Sumaira Foundation

Neuromyelitis Optica Spectrum Disorder (NMOSD) and Myelin Oligodendrocyte Glycoprotein antibody disease (MOGAD) are neurological autoimmune diseases that cause blindness and paralysis. While NMOSD and MOGAD are rare diseases, autoimmune diseases are common, and so is finding scientific and medical jargon tricky to understand. In this podcast, The Sumaira Foundation works to simplify the science associated with NMOSD, MOGAD, and related neuro-immune disorders, bringing together patients and experts.
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Language: en

Genres: Health & Fitness, Medicine, Natural Sciences, Science

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Episode #36 | When Disaster Strikes: Emergency Planning for People with Disabilities
Episode 8
Wednesday, 3 July, 2024

In this episode, we discuss emergency preparedness and inclusivity with our guest, Brian Kosczuk, a second-generation paramedic and Pennsylvania EMS Educator of the Year.Brian shares how living with a rare disease, myositis, and being a cardiac arrest survivor have allowed him to see different perspectives and how that shapes his role as a first responder, educator, and advocate.Brian also discusses the challenges and solutions for ensuring emergency alerts and responses are accessible to people with disabilities. From adaptive technologies to the role of local emergency managers in accommodating specific needs, he provides valuable insights into making emergency services more inclusive.Tune in as he gets us thinking about how to prepare for the worst.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project andwas made possible with the generous support of Genentech.SOCIAL & WEBSITE:Brian KosczukLinkedIn - https://tinyurl.com/2he45j6nDemystifying NMO podcastInstagram - www.instagram.com/demystifying_nmomogTwitter - twitter.com/DemystifyingNMOThe Sumaira FoundationWebsite - www.sumairafoundation.orgFacebook - www.facebook.com/TheSumairaFoundationVoices of NMO & MOG - www.sumairafoundation.org/awareness/voices-of-nmo/ADDITIONAL LINKSPreparing for Disaster for People with Disabilities and Other Special Needs(FEMA and the American Red Cross)https://tinyurl.com/ycjpxga2People with Disabilities (U.S. Dept. of Homeland Security) https://www.ready.gov/disabilityDisability and Health Emergency Preparedness (CDC)https://tinyurl.com/yg73h3uuSUPPORT THE PODCASTDonate to Illuminatehttps://www.sumairafoundation.org/advocacy/donate/CREDITS:Producer & Host - Brian DawsonMusic - Denys Kyshchuk from Pixabay