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Confessions of a Rare Disease MamaAuthor: Jillian Arnold
Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent. Language: en-us Genres: Health & Fitness, Kids & Family, Medicine, Parenting Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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The Gap in Mental Health Support After a Diagnosis
Episode 67
Friday, 27 March, 2026
Send us Fan MailWhen your child receives a life-altering diagnosis, you leave the hospital with a care plan....But no one gives you a coping plan.In this episode, I’m talking about the part no one prepares you for: the emotional aftermath of becoming a medical parent overnight. The grief, the anxiety, the constant fear… and the expectation that you’ll somehow carry it all while staying strong for your child.We talk so much about treatments, therapies, and survival, but almost nothing about what it takes to survive this emotionally. And unfortunately there is a HUGE gap in the medical system and mental health support for caregivers. If you’ve ever felt overwhelmed, isolated, or like you were quietly falling apart while caring for your child… this episode is for you.You are not alone in this.💬 In This Episode, We Talk About: What the early days after diagnosis really feel like The gap in mental health support for medical parents The emotional weight of caregiving The pressure to “hold it all together” Why so many parents feel unseen and unsupported What it means to need a coping plan, not just a care planResources & Links for this episode:Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift ShopLearn more about our brave warriors: saveromanandstella.comSupport our family: GoFundMeFollow us! Instagram: @confessionsofararediseasemamaTikTok: @rare_mamaFacebook: Jillian Arnold & Confessions of a Rare Disease MamaGet your FREE Positive Affirmations for the Medical Parent PDF here!Shop our ...
