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A new kind of celebrityAuthor: Venil Ali
A new kind of celebrity showcases stories of individuals who are breaking barriers, overcoming obstacles and making the world a better place. A show that aspires to redefine the word 'Celebrity' as a person who needs to be celebrated. If you are looking for some positive stories, or to be inspired, or to act or make the world a better place. Join us as we celebrate individuals, learn from their experience, leadership and wisdom and feel inspired by their journey. Listen on and join the community. Become a new kind of celebrity. #Inspire #Leadership #Journey #Changemakers #Impact #SocialImpact Language: en Genres: Personal Journals, Society & Culture Contact email: Get it Feed URL: Get it iTunes ID: Get it Trailer: |
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MONISHA & KEYA HATKAR - Dancing on Wheels - Redefining Spinal Muscular Atrophy as I M Possible -EP39
Episode 39
Friday, 27 February, 2026
What happens when your daily life is a high-stakes battle against biology? What happens when a "terminal" diagnosis meets an unstoppable spirit? If you are the Hatkar's, then you 'Dance on wheels.'In this episode, we are joined by the powerhouse duo Monisha and Keya Hatkar, a mother and daughter who are transforming the narrative around Spinal Muscular Atrophy (SMA) from one of limitation to one of limitless impact. Keya, a 15-year-old, is a recepient of the Pradhan Mantri Rashtriya Bal Puraskar, a three-time author (Dancing on my Wheels, I M Possible, A book on how to write books) , a TEDx speaker and a podcaster. She has won multiple awards at the National Young Authors Fair for her books. She doesn't view her wheelchair as a limitation but a platform to dance on. Her mother, Monisha Hatkar, is a professionally qualified architect who spent 25+ years in corporate real estate before pivoting her life to become a "Chief Belief Officer" for her daughter. A podcaster and community builder, today she is building the world's largest community on Inclusion. Through iniatives like I M Possible, SMAARTR, they aim to generate revenue to build sustainability and self sufficiency for people affected by rare diseases. At month 10, Keya was diagnosed with Spinal Muscular Atrophy (SMA), a rare progressive genetic disease. The doctors gave her 2 years to live, with Monisha's approach to life, they have far from beaten those odds. SMA affects 1 in 10,000 people and is one of the world's most expensive medical interventions costing crores of rupees each year. #rarediseases #SMA #resilience
