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The Rare Disorder PodcastAuthor: Shivani Vyas
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more! Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast Language: en Genres: Natural Sciences, Science Contact email: Get it Feed URL: Get it iTunes ID: Get it Trailer: |
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Leading Through Stillness: A Summer Abroad
Sunday, 24 August, 2025
This episode isn’t about rare disease, advocacy, or biotech—at least not directly. It’s different. It’s slower. It’s personal.I recorded this audio piece on my summer abroad in Switzerland and Italy, where I spent time hiking, wandering, and rethinking what leadership means when you’re not in control, but still choosing how to move.It’s part travel log, part inner documentary. I talk about stillness, curiosity, presence, and how stepping away from my usual roles helped me return to them with more clarity.If you’ve been feeling burnt out, stuck, or unsure how to lead when you don’t have answers—this one’s for you.🎙️ It’s not my usual content, but maybe it’s exactly what I needed to create right now.Stay tuned for the next episode of The Rare Disorder Podcast, coming soon.
