Epilepsy Sparks Insights

Author: Torie Robinson

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.
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Genres: Health & Fitness, Life Sciences, Medicine, Science

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Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl
Episode 230
Wednesday, 17 September, 2025

In this second episode with Dr Phillip Pearl, we explore the human side of rare epilepsies: what drives him as a paediatric neurologist, how advocacy transforms progress, and why research in ultra-rare conditions can change the lives of people with common disorders. We also tackle difficult but vital topics - SUDEP, depression, and suicide in epilepsy - and end on a hopeful note with music and the brain! 🌐 More about Phillip 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/phillip-pearl-rare-epilepsies-sudep-neurology-journey 👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎧 Watch the chat on YouTube 👇🏻 https://youtu.be/scBYPashBAs 📖 Chapters 00:00 – Intro 00:56 – Meet Dr Phillip Pearl 01:17 – What keeps you going, as a paediatric neurologist 03:19 – Choosing paediatric neurology 05:06 – Falling in love with neurology 06:25 – Future of metabolic epilepsies 07:30 – Gene therapy breakthroughs 09:44 – SUDEP & risk awareness 11:18 – Depression, mortality, & suicide in epilepsy 11:55 – The intersection of music and epilepsy 12:28 – Conclusion & thanks 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks