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Living With SMAAuthor: Spinal Muscular Atrophy UK (SMA UK)
The charity SMA UK invites different hosts from across the SMA Community together to discuss different topics. This is great place to find useful tips, recommendations, and hear personal stories. Language: en-gb Genres: Business, Non-Profit Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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EP:45 Talking Men’s Wellbeing While Living With SMA
Saturday, 27 December, 2025
In the latest episode of the Living With SMA podcast, hosts Stephen, Louis, and Ben delve into the often-overlooked topic of men's wellbeing, particularly in the context of living with spinal muscular atrophy (SMA). With personal stories and practical coping strategies, they highlight the importance of mental health and the unique challenges faced by men in society today.Main Content:Understanding the Challenge of Mental WellbeingThe episode begins with a warm welcome to listeners and a brief introduction to the podcast's mission of making SMA discussions accessible to everyone. Host Stephen Jones, who lives with SMA type three, shares a personal struggle with sleep as he reflects on how anxiety about upcoming responsibilities affects his rest. He notes, "As I got older, my sleep has been getting a bit worse... I started to sort of worry a little bit about actually, will I be able to... do the drive and get there?" This sentiment resonates with many listeners, highlighting the connection between physical health and mental wellbeing.Sharing Personal ExperiencesLouis, who has SMA type two, echoes Stephen's concerns about sleep, stating, "I struggle to get to sleep because my mind is always going at a million miles an hour." He describes how small anxieties, such as planning for meetings and bathroom breaks, can disrupt his sleep more than significant events. Similarly, Ben shares his experiences with anxiety, emphasizing the cumulative stress of daily life and the need for effective coping mechanisms.Coping Strategies for Mental HealthThe discussion naturally shifts to coping strategies that have helped the hosts manage their mental health. Ben mentions a grounding technique that focuses on engaging his senses to bring him back to the present moment, saying, "If I do find myself sort of spiraling into my own head... I sort of just have to focus on my senses." Louis introduces the use of white noise to create a calming environment, and he also mentions the impact of prescribed marijuana oil on improving his sleep. This open dialogue about coping strategies serves as a valuable resource for listeners seeking practical advice.Addressing Societal Pressures on MenAs the conversation progresses, the hosts reflect on societal expectations placed on men, particularly regarding emotional expression and mental health. Louis shares his journey of overcoming the pressure to conform to traditional masculinity, stating, "I could never really fit that mold... it is hard when you think about society will say, you know, men have to be strong." Ben adds that acknowledging the need for help is vital, emphasizing that seeking support does not equate to weakness. This discussion challenges stereotypes and encourages listeners to redefine what it means to be a man in today's world.Conclusion: Key TakeawaysThe Living With SMA podcast offers a refreshing perspective on men's wellbeing, particularly for those living with SMA. The hosts' candid discussions about sleep struggles, anxiety, and societal pressures encourage listeners to prioritize their mental health and seek help when needed. Key takeaways include the importance of sharing personal experiences, exploring coping strategies, and challenging traditional notions of masculinity. By fostering an open dialogue, the podcast aims to create a supportive community for individuals navigating similar challenges.
