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#BeyondHAE Youth Produced PodcastAuthor: US Hereditary Angioedema Association
The #BeyondHAE Podcast is a series dedicated to amplifying the voices of young people affected by Hereditary Angioedema and raising awareness about the disease. Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that, an opportunity for young people affected by HAE to share their unique stories with you! Visit www.haea.org for Hereditary Angioedema support, information and resources. Language: en Genres: Business, Non-Profit Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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#BeyondHAE: High-Fiving Palm Trees
Episode 12
Monday, 3 November, 2025
In this episode of the #BeyondHAE podcast, host Zach shares his powerful journey growing up with Hereditary Angioedema (HAE). His story chronicles his experience dealing with an especially challenging attack after high-fiving a palm tree, learning self-infusions as a teen, and finally discovering a sense of freedom through modern treatments. Sponsored by KalVista Pharmaceuticals, this episode takes listeners inside Zach’s experience with the oral on-demand treatment EKTERLY®, which transformed the way he manages HAE. Through resilience, advocacy, and hope, Zach’s story offers inspiration to anyone navigating life with a rare disease.This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, www.haea.org.Thank you to our sponsor, KalVista.
