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#BeyondHAE Youth Produced Podcast  

#BeyondHAE Youth Produced Podcast

Author: US Hereditary Angioedema Association

The #BeyondHAE Podcast is a series dedicated to amplifying the voices of young people affected by Hereditary Angioedema and raising awareness about the disease. Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that, an opportunity for young people affected by HAE to share their unique stories with you! Visit www.haea.org for Hereditary Angioedema support, information and resources.
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Language: en

Genres: Business, Non-Profit

Contact email: Get it

Feed URL: Get it

iTunes ID: Get it


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#BeyondHAE Podcast: Advocating for Yourself As You Transition into College
Episode 11
Monday, 25 August, 2025

In this inspiring episode of the #BeyondHAE Podcast, HAEA Youth member Ally takes the mic to share an exciting update on the newly revamped HAEA College Transition Guide, designed to support students with HAE who are moving away from home to attend college.Ally is joined by fellow HAEA Youth Leader Paige for an honest and insightful conversation about their own college journeys. Together, they discuss the unique challenges of living in the dorms with HAE, from managing symptoms to balancing academic and social life. They share practical strategies they’ve used to navigate campus living, advocate for their needs, and stay healthy while embracing independence.Whether you’re a high school senior preparing for the big move, a current college student, or a parent supporting your child’s transition, this episode offers valuable tips, relatable experiences, and reassurance that you’re not alone in this new chapter.Tune in for empowering advice and a fresh perspective on making the most of your college experience while living with HAE!This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠Pharvaris⁠⁠⁠⁠.

 

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