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Health Story CollaborativeHarnessing the healing power of stories. Author: Health Story Collaborative
The mission of Health Story Collaborative is to keep the patient voice alive in healthcare and to harness the healing power of stories. By collecting, honoring and sharing stories of illness and healing, we strive to make the process of navigating illness less isolating and to empower individuals and families facing health challenges. Our belief, supported by research, is that storytelling is healing for both story sharers and listeners. Stories have the power to transform individuals as well as the healthcare system. Language: en-us Genres: Science Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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Episode 9: Sue's Story
Friday, 2 March, 2018
Health Story Collaborative Podcast Episode 9: Sue’s Story (Originally aired on the WBUR Commonhealth Blog). In our last episode, Sue shared her story of living with Lymphangioleiomyomatosis (LAM). LAM is a rare, chronic, progressive lung disease in which the lungs fill up with cysts. In today’s episode, she shares her story of infertility. This story began before her diagnosis with LAM but came to be shaped by her disease. Fueled by estrogen, LAM would progress rapidly during pregnancy due to the high levels of the hormone, accelerating her lung destruction. Having been trying to conceive a child with her husband, Sue now had to explore alternative ways to have children. In speaking with Health Story Collaborative, Sue describes her journey to accepting her diagnosis of infertility, and how she and her husband were still able to build a family. This podcast is a product of Health Story Collaborative, a nonprofit organization dedicated to harnessing the healing power of stories. To learn more about Sue’s story, and to find resources on LAM and infertility, please visit www.healthstorycollaborative.org. Music by Jack Broza Lawrence, www.jackbroza.com.
