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Hope CharitiesAuthor: Jonathan James
Honest conversations about bleeding disorders, rare diseases, and chronic illnesses. Language: en-us Genres: Health & Fitness, Medicine, Mental Health Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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She Refused to Stay Silent: Connie Montgomery on Diagnosis After Decades of Dismissal
Monday, 8 December, 2025
A candid conversation with Connie Montgomery charts a lifetime of being dismissed, the car accident that unlocked a Factor VII diagnosis, and the fight to secure prophylaxis. We spotlight bias, culture, and the power of narrative medicine to change outcomes for women with bleeding disorders.• Growing up with unexplained bruising and nosebleeds• Gullah Geechee cultural privacy and silence• Repeated dismissal by clinicians and loss of trust• Heavy menstrual bleeding through two pregnancies• Diagnosis after an ER doctor listened and consulted• Phenotype over lab numbers in rare bleeding care• Securing prophylaxis and navigating insurance barriers• Building trust and health literacy with care teams• Organizing patient power and industry accountability• Compassion that moves beyond empathy into actionHelp us reach more listeners! Share this episode with your friends and family so no one feels alone. And if you haven’t yet, please like and subscribe. It makes a big difference in getting this content in front of others.Special Thanks to Genentech for sponsoring this episode.Support the show
