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Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationAuthor: Rare Genomics Institute
We talk to rare disease experts about treatments, trials, and new developments, and rare disease patients share their experiences and advice for staying positive in the face of diagnosis. Learn more about the RareShare.org community, and how you can get involved. Get in touch if you are an expert or patient who would like to be on the podcast! Email us at rgpodcast@raregenomics.org Language: en Genres: Health & Fitness Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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Genetic Counseling in Rare Diseases
Saturday, 24 February, 2024
Two genetic counselors, Sasha Bauer and Chloe Cheung, discuss how genetic counseling can help rare disease patients understand and cope with their condition. While genetic information does not always lead to clear therapeutic options, the knowledge gained is empowering.
