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Journeys through pulmonary fibrosis  

Journeys through pulmonary fibrosis

Author: Boehringer Ingelheim International GmbH

Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, Pulmonary Fibrosis. In an effort to build and give a voice to this courageous community, we bring you Journeys through Pulmonary Fibrosis a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. Join us as we travel through their journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
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Language: en

Genres: Health & Fitness, Medicine

Contact email: Get it

Feed URL: Get it

iTunes ID: Get it

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When Scleroderma Affects the Lungs: Why it’s Important to Act Early.
Episode 28
Monday, 29 June, 2026

In this episode of ‘Journeys Through Pulmonary Fibrosis’, host Ilaria Galetti is joined by Ruth Ajayi, who is living with systemic sclerosis, and a rheumatologist Dr Cosimo Bruni, to explore the impact of this rare autoimmune condition on lung health. Together, they discuss the often complex and emotional path to diagnosis, the challenge of navigating care across multiple medical specialties, and the realities of adapting to life with a chronic disease. Through both personal and clinical perspectives, the conversation highlights the importance of early detection in managing progressive lung scarring, and how a strong partnership between patients and healthcare professionals can help individuals navigate change and find a new sense of normal.

 

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