 |
Essential EthicsAuthor: The Royal Children's Hospital, Melbourne
Essential Ethics, from the Childrens Bioethics Centre at The Royal Childrens Hospital (Melbourne, Australia) presents discussion of challenging cases that come up when treating children. Hear the most up-to-date thinking and draw knowledge from the ethics toolkit. After a decade or more of experience our team of world-recognised ethicists takes on the hardest cases. Essential Ethics is informative, interesting and always relevant. Hosted by Professor John Massie, a clinician and bioethicist at The Royal Childrens Hospital, Melbourne. Language: en Genres: Health & Fitness, Medicine, Philosophy, Society & Culture Contact email: Get it Feed URL: Get it iTunes ID: Get it |
Listen Now...
2025 National Paediatric Bioethics Conference: Ethics of children with rare diseases and the resulting disability participating in commercially sponsored advanced therapy clinical trials
Sunday, 26 July, 2026
In this episode of Essential Ethics, recorded at the 2025 National Paediatric Bioethics Conference, research nurse coordinator Cat Wood from the Murdoch Children’s Research Institute explores the ethical challenges of advanced therapy clinical trials for children with rare genetic conditions. Focusing on gene therapy trials for inherited epilepsy, she examines issues of consent, disability, risk, and equity in research involving children with severe neurodisability. Cat highlights the importance of meaningful engagement with patients and families, offering thoughtful insights into the ethical complexities of developing potentially life-changing therapies.
