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Bioethics in the MarginsAuthor: Kirk Johnson and Amelia Barwise
Who we are: We are a collaborative of bioethics scholars interested in creating a more inclusive space to explore topics relevant to bioethics and the medical humanities while advancing equity and social change/restitution. Although we found our shared interests through our membership in the American Society for Bioethics and Humanities Race Affinity Group, we are independent of ASBH and any other organization. The views expressed in this podcast are our own and the speakers and do not represent our employers, institutions, or professional societies. Mission: Bioethics in the Margins aims to include topics, guests and audiences who are not always highlighted in mainstream bioethics discourse. We will focus on structural inequity and the role bioethics can play in social change. We aim to move beyond traditional bioethics frameworks and intentionally draw on intersectionality, social justice, racial justice, disability ethics, women, LGBTQ ethics, and topics specific to Black, immigrant/refugee, Native American, Latinx populations. Hosts: Kirk Johnson, Amelia Barwise Team Members: Gargi Pandey, Creative Director; Madeline Mahoney, Sound Editor; Wendy Jiang, Social Media Manager; Nicolle Strand, Advisor; Liz Chuang, Producer Language: en Genres: Philosophy, Religion & Spirituality, Society & Culture Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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Disparities in Healthcare Delivery with Dr. Liz Chuang
Episode 5
Monday, 29 June, 2026
In this episode, Dr. Chuang discusses some of her research, which has focused on racial disparities in health care delivery. She shares her journey to this topic starting with her childhood experiences as a witness to structural racism and implicit bias. She discusses how bias and structural inequities are reproduced in many ways, all affecting health and healthcare outcomes. Her work includes several focuses including interpersonal bias in healthcare communication with patients with serious illness and their families, bias in public health practices and bias in Artificial Intelligence. The discussion concludes with the ways that biomedical research has contributed to bias in healthcare over time. The discussion also includes some ways that researchers can move forward even in a challenging funding environment.Chuang E, Hope AA, Allyn K, Szalkiewicz E, Gary B, Gong MN. Gaps in Provision of Primary and Specialty Palliative Care in the Acute Care Setting by Race and Ethnicity. J Pain Symptom Manage. 2017 Nov;54(5):645-653.e1.Chuang E, Yu S, Georgia A, Nymeyer J, Williams J. A Decade of Studying Drivers of Disparities in End-of-Life Care for Black Americans: Using the NIMHD Framework for Health Disparities Research to Map the Path Ahead. J Pain Symptom Manage. 2022 Jul;64(1):e43-e52.Chuang E, Grand-Clement J, Chen JT, Chan CW, Goyal V, Gong MN. Quantifying Utilitarian Outcomes to Inform Triage Ethics: Simulated Performance of a Ventilator Triage Protocol under Sars-CoV-2 Pandemic Surge Conditions. AJOB Empir Bioeth. 2022 Jul-Sep;13(3):196-204.Binkley CE, Dellavalle NS, Chuang E. From Mitigation to Flourishing: We Must Harness Emerging Technologies to Improve Health of the Most Vulnerable. Am J Bioeth. 2026 Feb;26(2):127-129.Cited in this episode:Barnato AE, Berhane Z, Weissfeld LA, Chang CC, Linde-Zwirble WT, Angus DC; Robert Wood Johnson Foundation ICU End-of-Life Peer Group. Racial variation in end-of-life intensive care use: a race or hospital effect? Health Serv Res. 2006 Dec;41(6):2219-37.Johnson KS, Kuchibhatla M, Payne R, Tulsky JA. Race and residence: intercounty variation in black-white differences in hospice use. J Pain Symptom Manage. 2013 Nov;46(5):681-90. doi: 10.1016/j.jpainsymman.2012.12.006. Epub 2013 Mar 21.Ashana DC, Welsh W, Preiss D, Sperling J, You H, Tu K, Carson SS, Hough C, White DB, Kerlin M, Docherty S, Johnson KS, Cox CE. Racial Differences in Shared Decision-Making About Critical Illness. JAMA Intern Med. 2024 Apr 1;184(4):424-432.Dellavalle NS, Ellis JR, Moore AA, Akerson M, Andazola M, Campbell EG, DeCamp M. What patients want from healthcare chatbots: insights from a mixed-methods study. J Am Med Inform Assoc. 2025 Nov 1;32(11):1735-1745.
