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SCD StoriesAuthor: South Central PA Sickle Cell Council, Dwayne Golden
"SCD Stories" a podcast dedicated to amplifying the voices of individuals and families affected by Sickle Cell Disease and other health disparities. Each episode features powerful conversations with individuals who have experienced the challenges of living with Sickle Cell Disease firsthand, as well as experts in the field who are working to advance research, treatment, and care for those living with chronic illnesses and health disparities. Through these stories, we aim to shed light on the often-overlooked experiences of those living with Sickle Cell Disease and other health disparities, while also exploring strategies for resilience, self-advocacy, and community building. Join us on this journey as we seek to inspire hope, promote awareness, and cultivate empathy for those living with chronic illnesses and health disparities. Language: en Genres: Education, Health & Fitness, Medicine, Self-Improvement Contact email: Get it Feed URL: Get it iTunes ID: Get it Trailer: |
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The Marilyn Jackson Story
Episode 1
Sunday, 10 November, 2024
Host: Dwayne GoldenGuest: Marilyn Jackson, grandmother, vegan chef, and sickle cell disease advocateDiscussion on the prevalence of sickle cell disease globally and its limited awareness in the United StatesMarilyn’s experience after her grandson's sickle cell diagnosis, and the medical journey that followedThe need for increased education and resources for families of children with sickle cellMarilyn’s role in advocating for better care, proactive health strategies, and support for familiesA look into Marilyn’s personal connection to sickle cell trait and her commitment to helping others navigate this conditionInvitation for other families to share their stories on SCD Stories
