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The CHC Podcast: CHD ConversationsThe CHC Podcast: Congenital Heart Conversations is a podcast for and by the CHD community. Hosted by heart mom Anna Jaworski and The CHC Podcast Team, they will talk with people about a variety of topics of interest when living with a life-threatening... Author: Anna Jaworski
The CHC Podcast: Congenital Heart Conversations is a podcast for and by the CHD community. Hosted by heart mom Anna Jaworski and The CHC Podcast Team, they will talk with people about a variety of topics of interest when living with a life-threatening chronic illness.Become a supporter of this podcast: https://www.spreaker.com/podcast/the-chc-podcast-chd-conversations--5779157/support. Language: en Genres: Health & Fitness, Kids & Family, Medicine Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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Caring Through Complexity: End-of-Life Care
Episode 12
Sunday, 28 December, 2025
(00:00:00) Introduction and Episode Overview (00:00:17) Meet the Hosts and Co-Producer (00:01:04) Introducing Today's Guests (00:03:34) Misconceptions About Hospice Care (00:06:14) Psychological Perspectives on Hospice (00:09:32) Palliative Care for Children (00:17:59) Communicating with Children About Death (00:22:19) Balancing Emotional, Spiritual, and Physical Needs (00:24:30) Changing Society's Approach to Death (00:31:46) Navigating Uncertainty with Congenital Heart Defects (00:35:05) Small Acts of Kindness (00:35:49) Learning from Life's Experiences (00:36:04) Hope and Quality of Life (00:36:34) Acknowledging Life's Realities (00:37:26) Panelists' Closing Remarks (00:38:09) Heartwarming Stories and Resources (00:39:01) End of Life Care Discussion (00:39:50) Importance of Acceptance and Preparation (00:40:59) Personal Experiences with End of Life (00:44:34) Role of Medical Professionals (00:53:08) Children and End of Life Conversations (00:58:37) Final Thoughts and Takeaways (01:03:10) Upcoming Changes and Farewell In this heartfelt episode of The CHC Podcast: Congenital Heart Conversations, hosts Anna Jaworski and Annie Ulchak, both deeply connected to the congenital heart defect community, delve into the sensitive topic of end-of-life care. Joined by expert panelists, including pre-planning specialist Rosa Hernandez, mental health professional Dr. Michael Groat, and palliative care nurse Maureen Groden, they explore misconceptions about hospice care, the psychological and emotional aspects of end-of-life discussions, and the importance of normalizing conversations about death. Personal stories, practical advice, and a focus on honest communication provide listeners with valuable insights into navigating these challenging times.Maureen Groden's book is entitled, When a Loved One is Dying: Conversations about Care, Connection, and Coping. Available at Amazon, Bookshop, and Barnes & Noble.Become a supporter of this podcast: https://www.spreaker.com/podcast/the-chc-podcast-chd-conversations--5779157/support.
