The ConnectGroups Podcast SeriesAuthor: ConnectGroups
Helping Support Groups, Individuals and Carers Language: en Genres: Business, Government, Non-Profit Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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Rare Disease Day Series: Australian Pompe Association
Episode 33
Monday, 27 February, 2023
In recognition of Rare Disease Day, our staff member Emily had the pleasure of catching up with Renee Brown, Secretary for the Australian Pompe Association. Renee speaks about Pompe, its daily challenges, and the importance of raising awareness of rare conditions. To learn more about Pompe and support available, contact Renee at secretary@australianpompe.org.au. To find out about peer Support Groups in WA, contact ConnectGroups at info@connectgroups.org.au.