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Live Parkinson's - Live an Exceptional Life!Author: Chris
Live Parkinson's - Live an Exceptional LifeDiscover hope, resilience, and practical tools for living an exceptional life with Parkinsons. Hosted by Chris Kustanbauter, this podcast is dedicated to empowering those with Parkinsons to take charge of their lives and thrive through a holistic approach. Each week, tune in for expert interviews, personal stories, and actionable tips covering exercise, nutrition, optimism, and social connection all proven to improve quality of life. From managing symptoms to staying active and building meaningful relationships, this podcast will equip you with tools and insights to navigate life confidently and positively.Whether youre newly diagnosed, a seasoned warrior, or a caregiver, Live Parkinsons, Live an Exceptional Life brings you evidence-based strategies and inspiring stories to help you overcome challenges and stay motivated on your journey. Lets embrace each day with strength, laughter, and community and live life on your terms.Subscribe now to join our supportive community, and never miss an episode as we tackle Parkinsons together one exceptional day at a time!Subscribe on YouTube - Live Parkinson's Live an Exceptional Life - From Tremors to TriumphVisit: https://www.liveparkinsons.com/#Parkinsons #LiveExceptional #QualityofLife #Inspiration #Community #LiveParkinsons, #Tremorstotriumph #ParkinsonsWarriors #SpectacularLifeGet my book - Spectacular Life - 4 Strategies for Living with Parkinson's - My Journey to Happiness - available on Amazon in paperback or Kindle (e-book) Language: en-us Genres: Fitness, Health & Fitness, Nutrition Contact email: Get it Feed URL: Get it iTunes ID: Get it |
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StrivePD & Guardian AI: How Rune Labs Is Bringing Precision Medicine to Parkinson's | Amy Gordon Franzen
Friday, 25 September, 2026
Send us Fan MailCan your Apple Watch help you and your neurologist manage Parkinson's disease more precisely? In this episode of Live Parkinson's – Live an Exceptional Life, host Chris Kustanbauter sits down with Amy Gordon Franzen - CEO of Rune Labs to unpack StrivePD — the FDA-cleared app that's changing how people with Parkinson's track symptoms, share data with their care team, and take control of their disease.Amy brings a rare dual perspective: a background in oncology precision medicine and a personal connection to Parkinson's after a genetic test revealed she carries the LRRK2 mutation. In this conversation, she explains why Parkinson's treatment has lagged behind cancer care's precision-medicine model — and how patient-generated data is starting to close that gap.In this episode, you'll learn:How StrivePD passively tracks tremor and dyskinesia minute-by-minute using the Apple Watch's FDA-cleared Movement Disorder APIWhat Guardian, StrivePD's built-in AI tool, can (and can't) tell you about your symptoms — and how it uses only peer-reviewed dataHow monthly StrivePD reports help make the most of short neurologist appointments by giving doctors objective, longitudinal dataThe role of exercise intensity data (including insights from the SPARX3 clinical trial) in slowing Parkinson's progressionHow Rune Labs keeps your health data secure while still contributing to biopharma research and drug developmentWhat Rune Labs' partnership with the Parkinson's Foundation and the PD GENEration study means for genetic testing and future treatmentsHow the app detects fall risk and freezing of gait, and flags high-risk zones before an incident happensWhy non-motor symptoms — mood, sleep, anxiety, and Parkinson's-related psychosis — are just as important to track as tremorWhat's next for Rune Labs, including expansion into essential tremor, dementia, and Alzheimer's disease, and an Android version currently in developmentHow to get started with StrivePD for free, plus what the optional Guardian subscription includesWhether you're newly diagnosed, a longtime caregiver, or simply curious about how technology is reshaping neurological care, this episode offers a practical, hopeful look at what's possible when patients, data, and doctors work together.Resources mentioned:StrivePD app (free on iOS, Android in development) — strivepd.comGuardian AI subscription ($14.99/month, annual discount available)Parkinson's Foundation PD GENEration studySubscribe for new episodes on exercise, nutrition, mindfulness, and community for people living with Parkinson's.👉 Visit liveparkinsons.com for resources, and more, and subscribe to our free monthly newsletter for the latest Parkinson's research, tools, and stories of resilience — delivered straight to your inbox.This podcast is for informational purposes only and is not a substitute for professional medical advice. Always consult your neurologist or movement disorder specialist before making changes to your care plan.Support the showDisclaimer: This podcast is for educational purposes only is not intended to treat or diagnose Parkinson's Disease. Please ensure that you are following the treatment plan developed by your doctor. Please ensure before starting anything new you get approval from your doctor. The information being provided is based on my own personal experiences and does not guarantee that it will benefit everyone.Disclosure: I discuss and promote products in this podcast that pay me a small commission at no cost to you. I use the commissions to help support this podcast and my website Liveparkinsons.com. I make you aware of any affiliate links by adding AFFLIATE Link right beside the link. Thank you for supporting this podcast.To help support the podcast please visit me on my Ko-fi page and buy a cup of coffee if you feel that I am providing information that is relevant and actionable to help you live a better quality of life. Please visit me at Liveparkinsons.comGet my book - Spectacular Life - 4 Essential Strategies for Living with Parkinson's - My Journey to Happiness
