Insightful Moments: My VIBE

Author: PTC Therapeutics

Everyone in the rare disease community has a story and every individual, every parent, every caregiver has a unique story to tell. Insightful Moments: My VIBE is here to tell those stories. We want to tell YOUR real-life stories and experiences from the rare disease community to inspire and remind listeners that were all in this together.
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Language: en

Genres: Health & Fitness, Medicine, Personal Journals, Society & Culture

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Friedreich's Ataxia Symposium Part 1
Episode 5
Wednesday, 17 September, 2025

Welcome back to Insightful Moments: My VIBE, presented by PTC Therapeutics. In this episode, Emily Hintze attended the Friedreich's Ataxia Symposium hosted by the Friedreich's Ataxia Research Alliance and Children's Hospital of Philadelphia in King of Prussia, Pennsylvania, where she spoke with a number of people who are affected by Friedreich's Ataxia, or FA. You’ll hear from several symposium attendees as they share stories about their journeys with FA, the connection between physical and mental health, and so much more. So join us for this insightful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics. For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.Follow UsTwitter @PTCBioFacebook @PTC TherapeuticsInstagram @PTCTherapeuticsPresented by PTC Therapeuticswww.ptcbio.com Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.