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The Rare LifeAuthor: Madeline Cheney
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations dont shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities. Language: en Genres: Kids & Family, Parenting Contact email: Get it Feed URL: Get it iTunes ID: Get it Trailer: |
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221: Equipment for Our Medically Complex Children | Grief, Gratitude, and Everything In Between
Episode 221
Thursday, 9 April, 2026
At face value, our kid’s equipment is just stuff. It helps our kids move, eat, hear, breathe, communicate, and more. But when that “stuff” feels like it’s taking over our lives (and homes), complicated feelings can come up.In this episode, Madeline and Alyssa talk about the emotional, logistical, and financial reality of living with medical and mobility equipment. From the grief that can show up when a new piece of equipment arrives, to the frustration of a system that makes you fight so hard to get something your child may not even like, there's so much more to this topic than it seems on the surface.We get into the design problems that make managing equipment harder, the disagreements that come up when one partner is ready to try everything and the other isn't, the comments from other people that land all wrong, and what it actually looks like to embrace your child’s equipment in whatever way you can.Whatever your relationship with your child's equipment right now, this episode has something for you.And a huge thank you to our sponsor, MOOG Medical for making some parts of managing our children’s equipment a little easier with their 24/7 helpline and for making this episode possible!Links:Visit MOOG’s website to see themany ways they support families like ours!Join The Rare Life newsletter andnever miss an update!Fill out our contact form to joinupcoming discussion groups! Listen to Ep 125: Traveling with Medically ComplexKids.Listen to Ep 153: Hurtful Things Loved Ones Say.Listen to Ep 214: Relocating for Our MedicallyComplex Kids.Follow us on Instagram @the_rare_life!Donate to the podcast or Contactme about sponsoring an episode.
